Carer of the Year 2018
The end of the ceremony saw the truly deserving and inspirational Brenda O’Connell-Barry from Charleville, County Cork awarded with the 2018 Carer of the Year award.
Brenda along with her husband Trevor care for their 4 year old son Fionn who has NACC1, a rare genetic mutational condition. Fionn is the only known person in Europe with this diagnosis. Fionn stopped feeding and would cry for 20 hours a day in extreme pain. This lead to a nasal gastro tube and peg feeding.
Along with her son’s condition, Brenda herself suffers from a highly debilitating illness called Systemic Lupus and has undergone chemotherapy treatment to alleviate the pain. She also cares for her mother who has recently had a cancer diagnosis.